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Rheumatoid Arthritis - Equiraptor's Journal
Rheumatoid Arthritis
Ok, I'm a little depressed tonight, and I've been thinking about my arthritis. I feel like putting my story up, so here goes.

I was 16. It was the fall of my Junior year in high school. I played piccolo in the marching band. I had gotten my driver's license the summer before, and my parents would occasionally let me drive our old klunker... the one that still ran. My feet hurt more from marching rehearsals this year than they had before, but I didn't think much of it. Then my left wrist started hurting. I figured it was a mild case of Carpel Tunnel. Happens to flautists. Other things started hurting to, but I thought I was just over working a little, with it being marching season. And it was getting cold. I've never liked the cold. Marching season ended and winter came. All the family was coming to town for Christmas. So much of me hurt, but I couldn't let them see. I'm an only child, and the only granddaughter on both sides. I'm supposed to be perfect.

Time passed, and things kept getting harder. I couldn't lift my hands above my head anymore. I had to find tricks to help me get dressed in the morning. I'd bend over, and let gravity pull down my arms. I went up and down the stairs sitting down. If I tried to stand, my knees would buckle, and I'd fall. I wouldn't sit on the ground anymore. Getting back up hurt to much. I couldn't run, I couldn't jump. Walking was a challenge. It felt like I was 80. I finally decided something must be wrong when things didn't stop hurting with spring. I told my mother, and we went to the doctor. That's when the diagnosis came. I was at the Rheumatologists in about a week. They were worried the arthritis would attack my heart and lungs. They put me on medications, initially Methotrexate, and things started to get better. A few months after Remicade was approved by the FDA, I started it.

My Methotrexate dose is now very low, and I'm experiencing no harmful side effects from it or the Remicade. My life is almost normal. A few of my joints are a little weak, but it's not really anything. I'm glad I'm doing so well. Not everyone responds to medication that well.

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Current Music: Matchbox 20 -- Bent

1 comment | Leave a comment
decibel45 From: decibel45 Date: July 10th, 2003 12:06 am (UTC) (Link)

Probably doesn't help when you fly into things...

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